Monday, January 27, 2014

Mother of son with Down syndrome to respond to The President’s State of The Union Address

U.S. Rep. Cathy McMorris Rodgers, who has a son with Down syndrome, is set to present the Republican response to the President’s State of the Union address Tuesday. McMorris Rodgers, R-Wash., serves as chair of the House Republican Conference and is the highest-ranking female Republican in Congress.
Photo Credit (Olivier Douliery/Abaca Press/MCT)
McMorris Rodgers has been vocal on disability issues since her son Cole, 6, was born with Down syndrome. She co-founded the bipartisan Congressional Down Syndrome Caucus and has supported legislation to limit the use of restraint and seclusion in the nation’s schools as well as bills to increase funding for Down syndrome research and to allow people with disabilities a way to save money without losing government benefits.

“When Cole was born he was diagnosed with Down syndrome. That’s not the news that any parents prepare to hear,” McMorris Rodgers said. “I’m so grateful for Cole and his influence on my life. I’m a better legislator; I’m a better person because of Cole’s impact on my life. He gives me a whole new passion and certainly a new purpose for serving in Congress and I want to make sure I’m doing everything that I can to ensure the next generation has as many opportunities and more.”

But how can she really relate to those in ‘the field’ getting their hands dirty managing their child’s business of disability?

As one commenter put it, “So, we expect her to relate to other parents of developmentally disabled children just like Sarah Palin did? This woman has the best insurance that we all pay for and makes more money than we will ever see in a lifetime so she never has to worry about what the parents in the real world worry about such as, how can they pay for the assistance their child needs?”

Some households may not ‘qualify’ for assistance because the total income coming in is calculated on the gross NOT what is actually brought home from the income earners. There are long waiting lists all over the place in everything and the red tape and bureaucrat mess, to say it kindly, is even more lengthy.

I invite you to view the full article by Michelle Diament on Disability Scoop.